The First-of-its-kind ASEAN Rare Disease Consortium Is Founded To Drive Equitable Access To Treatment For Rare Disease Communities In Malaysia And Beyond

BANGKOK, Thailand, April 1 (Bernama) — Rare diseases impact the lives of millions of people despite being rare. In Southeast Asia, an estimated 45 million people, approximately 9% of the region’s population, suffer from rare diseases. [i] The Medical Genetics and Genomics Association, Medical Association of Thailand and Thai Rare Disease Foundation joined hands with Takeda to host the 2^nd Southeast Asia Rare Disease Summit in Bangkok to address the complex challenges posed by rare diseases and ensure improvement for patients. Key stakeholders from diverse sectors, ranging from patient advocacy groups and caregivers to policymakers, clinicians, researchers, industry representatives, payers, and regulators, gathered once again for the summit. Held for the second year, the summit serves as a pivotal platform for stakeholders to address pressing issues, exchange insights and strategize meaningful advancements to improve diagnosis, access to treatment, health equity as well as patient empowerment with the aim of amplifying the patient voice for sustainable change.

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